Birgit Bortoluzzi

 Long Covid - ME/CFS - chronic diseases - Strategies from a 360 perspective


Long COVID, ME/CFS and Chronic Illnesses – Strategic Moves in a 360° Perspective

Effectively addressing Long COVID, ME/CFS, and other chronic illnesses requires a multifaceted and interdisciplinary approach. Our "chessboard" the healthcare and research landscape, must be occupied by numerous key players to enable a comprehensive and effective solution.

Based on a holistic examination of disease mechanisms, I have compiled an initial selection of relevant "players." This list is by no means exhaustive but represents a curated overview that illustrates the broad spectrum of potential strategies and interventions.

The 360-degree perspective was deliberately chosen to systematically encompass all crucial aspects, strategically pursuing the goal of checkmating these diseases. It will require numerous targeted moves, but I firmly believe that — both medically and societally — we can overcome these challenges if we maintain a comprehensive and integrative approach.

The order of the mentioned stakeholders does not imply a ranking, all participants are equally vital


Long COVID, ME/CFS und chronische Erkrankungen – Strategische Spielzüge im 360°-Blickwinkel

Die erfolgreiche Bewältigung von Long COVID, ME/CFS und anderen chronischen Erkrankungen erfordert ein vielschichtiges und interdisziplinäres Vorgehen. Unser „Schachfeld“ – der Gesundheits- und Forschungsbereich – muss mit zahlreichen Akteuren besetzt sein, um eine ganzheitliche und wirksame Lösung zu ermöglichen.

Auf Grundlage einer umfassenden Betrachtungsweise der Krankheitsmechanismen habe ich eine erste Auswahl relevanter „Spieler“ zusammengestellt. Diese Liste ist keineswegs abschließend, sondern stellt lediglich eine repräsentative Auswahl dar, die das breite Spektrum möglicher Lösungsansätze verdeutlichen soll.

Bewusst wurde der Ansatz aus einer 360-Grad-Perspektive gewählt, um alle relevanten Aspekte systematisch zu erfassen und das Ziel eines Schachmatts gegen diese Krankheiten strategisch zu verfolgen. Es wird zahlreiche gezielte Spielzüge benötigen, doch ich bin überzeugt, dass wir es – sowohl aus medizinischer als auch aus gesellschaftlicher Perspektive – gemeinsam bewältigen können, wenn wir den ganzheitlichen Blickwinkel beibehalten.

Die Reihenfolge der genannten Akteure stellt keine Wertung dar – alle Beteiligten sind gleichberechtigt und spielen eine essenzielle Rolle in diesem strategischen Prozess.


(M)eine kleine Auswahl von "Spielern" / My small selection of “players” (This list could go on indefinitely)

1. Professor CHAN Chun Yong, Eric BSc (Pharm) (Hons), PhD, Singapore – a real pioneering role with its PK Weekly Dose on LinkedIN

2. Medical Medium (Anthony William) - Many millions of people follow and live by it

3. Dr. Ziyad Al-Aly

4. Professor David F. Putrino (Long Covid specialist and neuroscientist - Mount Sinai/New York)

5. Dr. William Wallace, Ph.D (LinkedIn/Instagram)

6. YouScript: Kristine Ashcraft – PGX / Personalized Medicine

7. Dr. Amine Zorgani – The Microbiome Mavericks

8. PRECISEU project - Horizon Europe (25 partners from 12 European region)

9. Frank Bernier, PhD

10. Professor Yohannes Hagos (PortaCellTech)

11. Professor Henk-Jan-Guchelaar

12. Professor Erwin Loh

13. Michael F. Hughes (Supervisory Toxicologist at US Environmental Protection Agency (EPA))

14. Professor Dr. med. Carmen Scheibenbogen (Charité Berlin)

15. Professor Dr. Uta Behrends (TUM München)

16. Daniel Epstein 

17. Andrew Michaelson

18. Professor Dr. Robert Murphy (Freiburg)

19. Professor Magnus Ingelmann-Sundberg

20. Dr. Shilpa Thakur, Ph.D Medical Nutrition

21. Kent Jones (Multiple sclerosis guerilla and Accessibility advocate)

22. Professor Dr. Hannelore Daniel

23. Chris Methmann, Food Watch / Food Watch France

24. Zeyad Ibrahim

25. Ryan Stoffko (OPP NEURO-SPA's mission)

26. Evonne Fouesnant 

27. Dr. Eric Topol

28. Professor Kevin Kavanagh

29. Professor Dr. Ron Davis

30. Dr. Lisa Sanders (Yale)

31. David Tuller, DrPH

32. Peter Groenen (Biomarker Expert)

33. Miguel Angel Cabrera-Pérez

34. Dr. Lyle D. Burgoon (Professor, Institute for Integrative Toxicology)

35. Dr. Maureen Miller (a Columbia University infectious disease epidemiologist and medical anthropologist targeting systems level change)

36. Professor Jianzhong Wang (College of Veterinary Medicine, China Agricultural University)

37. Professor Antonella Bertazzo (Food Chemistry, Nutritional Science - University of Padua)

38. Professor Youssef Daali (University of Geneva: Anesthesiology, Pharmacology, Intensive Care and Emergencies)

39. Professor Ram Shankar Upadhayaya (Uppsala University)

40. Christoph & Philipp Ströck - WE&ME Stiftung - Österreich

41. Shelby Coates, PhD (Washington)

42. My Long Covid Advocacy

43. Janice Goh – Development of coffee simulator

44. Dotan Shaniv (Israel)

45. Nita Jain (Illuminating Biological Complexity)

46. Udoamaka (Amaka) Ezuruike

47. Dr. Uwe Gröber is one of the leading micronutrient experts in the German-speaking world

48. Cohen Center for Recovery From Complex Chronic Illnesses (Mount Sinai)

49. World Health Organization

50. American Academy of Clinical Toxicology (AACT)

51. Nanotechnology (Institute for Tissue Engineering and Regenerative Medicine, Helmholtz Munich)

52. University College London (Pharmacology and Toxicology)

53. Zhejiang University (China)

54. University of Montreal (Canada)

55. NYSIM a center for simulation education in the health sciences at CUNY & NYU Langone Health

56. CeMM (Wien)

57. NIH - National Institutes of Health

58. FEAM (Brüssel)

59. PAN Germany / Pesticide Action Network

60. FDA / EMA / CPIC / PharmVar, health research, pharmacovigilance, (Specialist) committees / BioBank Graz / Shanghai Zhangjiang Biobank

61. Munich Environmental Institute

62. IBM Watson Health

63. Luoheng Qin, InSilico Medicine

64. Mayo Clinic

65. University of Cambridge

66. Boston Scientific

67. Horizon Lab Company

68. Förderverein OrphanHealthcare (Dr. Frank Grossmann)

69. Disaster management strategies for Long Covid, ME/CFS and MCS

70. Frontiers

71. Solution Group (Beijing) Company

72. Memorial Healthcare system

73. National Healthcare Group

74. Kmch Research Foundation

75. BAYER

76. vfa - research-based pharmaceutical companies

77. MedWatch (FDA / USA)

78. European database of reported adverse reactions / EudraVigilance

79. Software and technology companies, start-ups

80. The many valuable patient organizations and associations, Healthcare providers, pharmacists/Pharmacists' associations, Healthcare providers, pharmacists, biobanks, insurers, health insurance companies, MedSafetyWeek organizers, fellows, investors, angel and venture communities, Environmental physicians, biomedical scientists

81. Pharmaceutical and vaccine manufacturers and developers (From A for AbbVie to V for ViiV Healthcare GmbH), MedTech Pharma

82. Educational institutions, lawyers, authorities, security forces, inistries

83. all international environmental organizations/institutions 

AND EVERY ONE OF US

Wollen Sie mehr über meine Ökosysteme "Personalisierte Medizin und PGx" im 360-Blick-Winkel erfahren? Would you like to find out more about my “Personalized Medicine and PGx” ecosystems from a 360° perspective?

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